困頓中顯光華 ─ 一位視障音樂資優生母親的生命轉化敘說

Abstract

本研究主要採行質性研究中的敘事探究法，以深度訪談的方式，與研究參與者共同努力，進行其真誠的自我剖析。論文中揀選視障音樂資優學生母親珊妮生命中的重要事件，輔以觀察及文件、照片、影音等檔案資料的蒐集，以「整體－內容、形式」的分析，建構、詮釋其生命歷程，並藉由深厚描述探討研究參與者的生活情境，清楚呈現其生命歷程的關鍵轉化經驗。又論及夫妻、親子間微妙關係的相處之道，作為敘事者與讀者間的交流連結，於產生共鳴後，讓讀者反觀映照自身處境，思索以何角色定位可適切落實生活中，達到情感、價值觀的有效遷移以自我提昇。 茲根據本敘事探究的情境脈絡與研究發現，歸納結論如下。 一、珊妮生育視障孩子，身為母親承受無常的生命震撼，陷入自我悲苦； 二、困頓中幸遇重要貴人，尋得終身可依靠的信仰，生命重新翻轉； 三、樂觀正向之個人特質始終迎向陽光，黑暗從此遠離； 四、一步一腳印，用愛再出發，維繫溫暖的家。 針對本敘事研究所探討之內容，其結果可作為未來研究的基礎，謹提供具體的參考方向，包括家庭支持、早療教育、親職教育、家長成長團體、雙重殊異子女的教育、轉化經驗與復原力的關聯程度等，值得未來研究深入探討。The narrative inquiry method was to conduct in the current qualitative research in order to work with the research participants by in-depth interviews to construct their sincere self-exposure. Shan Ni, the mother with a musically talented and visual impaired child, was the main research participant. Observations and the collection of the important life events of the mother, documents, photographs, audio-visual and other archives were employed in this study. By the analysis of "whole-content,form," her life history was constructed and interpreted. Through a thick description of the research participants life situation, the essential transformative experiences were presented. The way of getting along with the delicate relationship between husband and wife could be a communication between the narrator and the reader. Particularly, the purpose of this study was to guide readers to reflect on their own situations, think about the life identification, deal with emotions, and reach self-improvement effectively. Based on the context and findings of this narrative inquiry, the conclusions are summarized as follows: First, Shani has a visually impaired child. As a mother, she suffered from impermanent life shocks and fell into self-sadness. Second, encountering with significant persons in their challenges had them find a reliable faith so as to transform their own lives. Third, the optimistic and positive personalities always resulted in greeting the sun and being far away from the darkness. Fourth, taking one step at a time and starting again with love maintained a warm home. The results of the narrative inquiry could be the basis for future studies. Specific suggestions for family support, early intervention, parenting education, parent-growth groups, and twice-exceptional children’s education were provided. The relation of transformation experience and resilience was a worthwhile issue for the future study.