原來幸福在這裡：輕度自閉症孩子的家長的幸福感之旅

Abstract

了解輕度自閉症孩子的家長在養育孩子的歷程中，從一開始的不知所措與負面情緒，中途面對各種的困難，最後產生幸福感的內容，以及幸福感生成的背後因素。本研究採用質性研究的現象學研究，藉由立意取樣，使用半結構式的深度訪談六名輕度自閉症孩子的家長，探究出「具有幸福感的輕度自閉症孩子的家長」模型。研究結果發現，輕度自閉症孩子的家長，初期照顧孩子會有大量的負面情緒，家長們經由應對策略，包括：積極解決問題、調適壓力的策略、尋求支持，而家長覺得幸福感的內容，包括：孩子的回饋、親子之情、自我認可、深度的生命意義，至於幸福感生成的背景因素，不外乎：性格、正向思考的能力、良好的家庭關係。本研究結果為輕度自閉症孩子的家長的幸福感，作為輕度自閉症孩子的家長的自我調適、以及專業人士提供親職教育上的建議。How does well-being come about? This is a question many people wonder. We often assume that those with wealth and power are the happiest, while those struggling with poverty are the most unfortunate. But is that really the case?This study aims to understand the experiences of parents raising children with mild autism, tracing their journey from initial confusion and negative emotions, through the challenges faced along the way, to the eventual emergence of a sense of well-being. It also seeks to explore the underlying factors contributing to this sense of well-being. Adopting a qualitative, phenomenal research method, this study employed purposive sampling and conducted semi-structured, in-depth interviews with six parents of children with mild autism to develop a model of “parents of children with mild autism who experience a sense of well-being.”The results reveal that, in the early stages of caregiving, these parents experience a significant number of negative emotions. However, through coping strategies— such as actively solving problems, employing stress adjustment techniques, and seeking support— they gradually develop a sense of well-being. The content of this well-being includes: feedback from their children, the parent-child bond, self-recognition, and a deep sense of life’s meaning. The factors behind the sense of well-being include: Personal traits, the ability to reassess situations, and positive family relationships. The findings of this study provide insights into the well-being experienced by parents of children with mild autism and offer suggestions for parental self-adjustment and professional guidance in parental education.