社群媒體在經歷腫瘤治療過程中的角色—以七位青年為例

Abstract

社群媒體為人們日常生活中一個自由分享與抒發心情的地方，但是當疾病變成生活的一部分時，要如何才能克服內心的屏障和外界明顯區隔的疾病經驗，研究中所指的疾病為惡性腫瘤（以下文中簡稱癌症），當罹患癌症此類型的重症時，我們很難向外人開口，卻有一群人願意將自身的悲傷經驗公開於大眾分享。故本研究以「當疾病變生活」為主題，依據現象學之精神採取探索性研究，以半結構式訪談形式進行資料蒐集，並以質性研究方法做資料分析，探討這些抗癌經驗豐富的社群媒體經營者的經驗與其生活轉變後的適應以了解分享者的動機與心境。本研究問題如下：一、社群媒體對社群媒體經營者在罹癌前的意義？二、何種契機促使其運用社群媒體分享罹癌後的生病經驗？三、分享抗癌經驗的歷程有哪些不同階段？運用社群媒體在不同生命階段的意義如何？

本研究共收案七位，年齡介於20~40歲，屬於青年階段曾經罹患癌症現已康復處於穩定控制期的社群媒體經營者進行深度訪談。受訪者皆有經歷罹癌前後、分享到社群媒體、以及後期心態上的轉變這三階段，並從這三階段中整理出社群媒體的重要性與角色。研究發現病友能透過社群媒體分享找到自我價值，也因為身邊的親友鼓勵更有勇氣去面對社群媒體經營的一切困難，我們也在這其中發現同理心是社會發展的一項關鍵。

期許這份研究能帶給更多人勇氣與信心來面對生命中的負向經驗，更珍惜生命的存在，也能提供社會工作者與醫療工作者在疾病歷程中一項參考。Social media is a platform for people to freely share and express their feelings in their daily lives. However, when diseases become a part of life, how can people overcome the inner barrier, the apparently separated disease experience, and stress of not being understood by the outside world? The disease referred to in this research is malignant Tumor (hereinafter referred to as cancer), When suffering from a serious illness such as this type of cancer, it is difficult for us to speak to other outsiders, but there is a group of people who are willing to share their sad experiences during this hard time with the public, “and let their lives be shared on social media”.Therefore, this research takes "When the disease becomes life" as the theme, by adopting exploratory research based on the spirit of phenomenology, collecting data in the form of semi-structured interviews, and analyzing the data with qualitative research methods to explore these organizations with rich anti-cancer experience.

To understand the experience of social group media operators how and their adaptation after life changes and regain to understand the motivation of life and mood of thesharers.

The research questions are as follows: 1. What does social media mean to social media operators before cancer? 2. What kind of opportunity prompted them to use social media and to share their experience of illness after contracting cancer? 3. What are the different stages in the journey of sharing anti-cancer experience? What is the significance of using social media at different stages of life?

A total of seven cases were accepted in this study, who were between the ages of 20 and 40, who belonged to social media operators who had suffered from cancer in their youth and have recovered and now are in stable control for in-depth interviews. The respondent’s social media operators interviewed have all experienced three stages: Accept the fact of having cancer before and after cancer, sharing on social media, and the later mentality changes, and sorted out the importance and role of social media from these three stages.Studies have found that patients can find their self-worth through social media sharing, and because their relatives and friends encourage them with more courage to face all the difficulties of social media management, we have also discovered that the importance of empathy is a key part of social development.

It is hoped that this research will bring more people the courage and confidence to face the negative experience in life, cherish the existence of life more, and provide more referencefor social workers and medical workers in the course of disease.