女性癲癇患者創傷經驗後成長之生命故事敘說研究

Abstract

本研究旨在探討女性癲癇患者創傷經驗後的復原與成長歷程。研究者自身即為本研究對象之女性癲癇患者，故而本研究將採用縱向生命史的時間序列觀點，並且研究者於自我書寫的過程中，重新回溯罹患癲癇疾病的創傷事件，同時在重要關係人的回溯式訪談重新還原創傷事件，將所收集之訪談資料依時間軸排列，以理解研究參與者於創傷事件後所面臨的重大改變與影響，呈現鉅觀的癲癇患者生涯歷程。此外，本研究亦將以橫向的整體敘說方式，呈現自身創傷後成長的生命故事，透過「整體-內容」分析方式進行資料整理與分析，反思患者的創傷經驗和復原調適，深入探討女性癲癇患者及其重要他人於創傷經驗過程中，其心態調適策略與問題因應過程，紀錄患者微觀的生命故事，從患者自我書寫的過程中發掘創傷事件的意義。本研究結果發現如下：

(一) 生命史研究能讓研究者重新定位自己在研究中的位置，重新詮釋創傷背後的事件意義以及對於個體的啟示。 (二) 創傷患者必須探究創傷經驗的正向價值，並且學習信任與分享，才能讓自己覺察事件意義與成長。 (三) 他人的「承認」對自我之「認同」具有重要性與決定性的意涵，他人的支持亦可促使患者正向基模的改變幫助創傷後產生成長。 (四) 創傷患者可透過受創經驗的書寫獲得自我認同，並且憑藉積極樂觀、自我肯定的正向人格特質，超越創傷、產生自我轉化。Women with traumatic experiences of epilepsy are studied in the life story of recovery and of post-traumatic growth, using longitudinal life history in time sequence and horizontal approaching to the overall narratives. To integrate with the research-based self-narrative of women with epilepsy and the recall narrative of close relatives, the collected information is arranged according to the time table to render a macro epilepsy career. To record patient’s microscopic life story, using qualitative research methods in the "overall-content" approach for data processing and analysis reflects physical experience and stress adaptation. After all, we probe thoroughly into the feminine epilepsy patient and their close relatives with the process of traumatic experience to reveal the strategies of mental adaption and the reacting responses for problems in order to understand the significant change and impact after suffering epilepsy. The results showed: (A) Study of the life history makes a new interpretation of the meaning behind the traumatic events and inspiration to the researcher to re-define herself. (B) Women with epilepsy need to learn trust and share, and explore the positive values of traumatic experiences to become aware of their meaning and growth in the events. (C) "Recognition" from others and “Self-identification" possess decisive and importance meanings, and support from others can encourage the patient to have the positive attitude to generate post-traumatic growth. (D) Trauma patients can be self-identification from the traumatic experience written, and can depend on the positive personality of optimistic philosophy and self-affirmation to get cross over the trauma, resulting in self-transformation.