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The Intervention Effect of a Self-instructional Manual for Physician Diagnosing a Rare Disease-Acute Porphyria
The objectives of this study is to probe the intervention effect of a self-instructional manual for physician diagnosing a rare disease-Acute Porphyria. This study bases on “Pretest-Posttest Control Group Design” and selects specific field physicians as target audience. This self-administered structure questionnaire was developed through the process of reliability and validity of test and pre-test analysis. The content of self-instructional manual is built up from relevant literatures’ references, interviews with physicians and patients, and is finalized with experts’ reviews. Finally, we collected results from 40 physicians in experimental group and 48 physicians in control group (never met before, randomely picked up and willing to answer to our questionnaire), by giving them the same duration between pre-test and post-test. The intervention effects were evaluated by using one way analysis of covariance. The result of this study demonstrates the self-instructional manual can fit in the physician’s interests and needs, and can increase their knowledge, attitude, and self-efficiency when diagnosing Acute Porphyria, and all of above have statistically proven significant differences. This is the first time in the country that we do a study on rare diseases issue from health education’s perspective for physicians. The self-instructional manual can provide references for physiciansand the results of this research can serve as future preventive references for rare diseases.
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