王華沛許秋凰2019-08-282011-8-292019-08-282011http://etds.lib.ntnu.edu.tw/cgi-bin/gs32/gsweb.cgi?o=dstdcdr&s=id=%22GN0694170017%22.&%22.id.&http://rportal.lib.ntnu.edu.tw:80/handle/20.500.12235/89365本研究旨在探討心智障礙者居住於團體家庭的生活經驗。研究者邀請了三位居住於團體家庭達一年以上的心智障礙者及其重要他人與團體家庭的工作人員來參與研究。 本研究採取質性研究法,透過參與觀察、訪談及蒐集相關資料,進行資料的整理和分析。研究結果先呈現三位主要研究參與者入住團體家庭前後的生命故事,再指出從三個故事中發現的共同點:原生家庭的困境、在團體家庭的改變。最後探討造成研究參與者這些改變的團體家庭具備了哪些健康家庭的特質。 研究結果顯示,研究參與者皆帶著家庭的困境來到團體家庭,包括心智障礙者本身及其父母雙重老化、家長自認缺乏對待心智障礙子女的適切態度及方法。三位研究參與者在入住團體家庭後,生命皆有了明顯的轉彎,朝著正向的角度發展,其改變包括:(1)適應行為的增加,如培養良好生活習慣、提升人際互動能力、增進金錢管理能力、開發未知潛能、個性轉為正向、自我控制能力提升。(2)非適應行為的改善,如攻擊破壞行為消失、對工作人員的佔有欲減少、改善固執行為及不良習慣,例如暴飲暴食、偷竊、衝動購物、花錢無度等。(3)社區參與的增加,如使用社區資源、參與社區活動。三位研究參與者的改變,來自於工作人員努力以經營一個家的方式來經營團體家庭。團體家庭具備了健康家庭的許多特質,令三位研究者對團體家庭產生認同感及歸屬感,因而發生許多正向的改變。 根據以上研究發現,本研究針對團體家庭及其他夜間住宿服務機構的實務工作者、心智障礙者之家人、政府相關單位及對未來研究者,分別提出相關建議。The present study aims to explore the living experiences of people with intellectual disabilities at group homes. Three people with intellectual disabilities who have stayed at a group home for more than one year, their significant others and the staff at the group home were invited by the researcher to participate in the study. Qualitative research is applied in this study. The data were obtained from observation, interviews, and gathering of relevant information. Next, they were organized and analyzed. First presented in the research result were the life stories of the three major participants before and after moving to the group home. Common points found to be shared by all three stories were then indicated: difficulties at their families of origin, and their changes at the group home. Finally discussed were the features of a healthy family that the group home had which caused these participants to change. The research result shows that all participants came to the group home with certain difficulties in their families, such as aging of both the people with intellectual disabilities themselves and their parents or the parents’ self-perception of lacking proper attitude and means to treat their children with intellectual disabilities. All three participants had prominent changes after moving into the group home and demonstrated positive development. Their changes included: (1) increase of adaptive behavior, such as forming good living habits, developing the ability to interact with others, acquiring skill in money management, exploiting their potential, molding positive character, and bettering self-control (2) decrease of maladaptive behavior, such as discontinuing offensive and destructive behavior, being less possessive about the staff, improving fixed behavior and bad habits like gluttony, theft, impulsive shopping, careless spending, and etc. (3) increase of community participation, such as the use of community resources and the participation in community activities. These changes of the three participants resulted from the staff’s efforts to run the group home in a way that a family is kept. The group home had many features that were found in healthy families, which made the three participants feel a sense of identification and that of belonging toward their group home. As a result, many positive changes were made. Based on the above findings, suggestions were offered respectively to practitioners at group homes and other institutions providing night accommodation service, families of people with intellectual disabilities, the authorities concerned, and future researchers.團體家庭健康家庭心智障礙者質性研究社區居住group homeshealthy familypeople with intellectual disabilitiesqualitative researchcommunity living這是我的家?心智障礙者團體家庭之生活樣貌