張千惠Chang, Chien-Huey吳秋南Wu, Chiu-Nan2022-06-082024-01-282022-06-082021https://etds.lib.ntnu.edu.tw/thesis/detail/32683baafa07deee54dcf3f5e2e3bf0b/http://rportal.lib.ntnu.edu.tw/handle/20.500.12235/118574本研究採敘事探究(narrative inquiry)法，旨在探究中途失明者主要照顧家屬心路歷程，並了解照顧者對社會支持的覺知。為提供其他中途失明者與其照顧家屬能有可供參考之案例，以協助他們能有效面對並適應新生活模式，本研究以立意取樣，邀請五位重建成功之中途失明者，及六位他們的主要家庭照顧者，同為協同研究參與者，採用半結構訪談大綱，蒐集其照顧歷程的生命故事。針對研究問題，提出以下結論。本研究對於中途失明者照顧家屬心路歷程研究之新發現有：一、主要照顧者對失明家屬就醫態度視情況有異；二、男性承擔照顧意願增高，顛覆過去的刻板印象；三、照顧者與被照顧者之雙老家庭，照顧的高難度值得關注；四、照顧者與被照顧者都應建立強大內在能量，並擴展生命視野；五、照顧家屬具正向宗教信仰，有助於接受失明的事實，並規劃妥善照顧方式；六、中途失明者成功的生活重建，有助於家庭盡早重回正常的生活軌道。七、本研究五位中途失明者，是屬於生活重建成功適應的案例，且其照顧家屬的人格特質良好，故照顧者的身心健康狀況未必受影響；八、中途失明者不同時期生活狀態，是影響主要照顧家屬情緒歷程的主因；九、現今社群網絡，有助於主要照顧家屬人際關係不受影響；十、本研究中六個家庭之經濟狀況原本即較為優渥，在發生家人成為中途失明者後，其家庭經濟狀況並未受到影響。故照顧家屬者是否受困於經濟壓力，端視該家庭原有經濟狀況而定；十一、照顧家屬能自我覺察，有助於因應負向歷程；十二、照顧家屬向外尋求支援有助於重建正向生活。  探討中途失明者照顧家屬對社會支持的覺知的結論為：一、具價值性的資訊支持，有助於採取正確且適當決定照顧策略；二、具體的實質支持，有助於消除或減緩照顧者的壓力；三、網絡支持有助於照顧者減少孤單感；四、來自受照顧者的情感支持，有助於主要照顧者感受到愛與鼓勵；五、受照顧者、其他親人或陌生人的肯定，都是主要照顧者自尊支持的來源。 本研究亦針對中途失明、主要照顧家屬、外部支持系統提出不同建議，期望對照顧安排、照顧能量提升、以及照顧服務規劃，能有所助益。此外，根據本研究限制，亦對未來研究提出相關建議。This qualitative study, with narrative inquiry, explored the psychological process of family caregivers for individuals with adventitious blindness. Therefore, the focus of this study is to investigate the psychological process of family caregivers and the social support that caregivers perceived. Data were collected and analyzed from semi-structured interviews of 11 participants, including 6 family caregivers and 5 individuals with adventitious blindness. To investigate the new life of the persons with visual impairments and their caregivers, this study chose purposive sampling methods to find out their experiences and perceptions.By analyzing the life experience of the participants, 12 themes emerged as follows: (1) caregivers had different attitudes towards medical treatment of the family members with visual impairments, (2) male mem-bers of family were willing to take more responsibility of caring than before; (3) it was necessary to pay attention to the issues of double-aging families of caregivers and care recipients; (4) both caregivers and care recipients needed stronger inner energy for a wider vision of life; (5) positive religions were helpful for caregivers both in accepting family members with visual impairment and care taking of him/her; (6) successful rehabili-tation of the persons with visual impairments was the key to re-build normal family life; (7) the caregivers maintained physical and mental health because of optimistic personalities and the successful rehabilitation of their care recipients; (8) the main reason of influencing the caregivers’ emotion was the different period of the recovering process of their care recipients; (9) the social network groups contribute to maintain caregivers’ interpersonal relationships; (10) in this study, the financial pressure did not arise since the six families with visually-impaired members had favorable financial situations, hence, the caregivers were not suffering from financial dif-ficulties as some literature mentioned; (11) caregivers’ self-awareness of their challenges was helpful for them to cope with their negative experi-ences during the process; (12) looking for social support contributed to reconstruction of positive life for caregivers.The conclusions about caregivers’ perceptions of social support con-tained: (1) appropriate methods can be made for caregivers through helpful informational support; (2) specific tangible supports are able to remove or alleviate the stress of caregivers; (3) longlines of caregivers will be reduced by using social network support; (4) emotional support from the care recipients makes the caregivers feel being loved and encouraged; (5) Recognition from care recipient, family members or outsiders is the sources of caregivers’ esteem support.  For promoting benefits of life care, this study offers suggestions to persons with visual impairments, caregivers and social support system of the society. Moreover, some suggestions are provided for the future re-search and limitations are also discussed.中途失明照顧家屬生活重建自立生活社會支持adventitious blindnesscaregiverrehabilitationindependent livingsocial support學術論文